New Diagnosis

So, if you know me very well at all, then you know most of my life I have suffered in pain. If not, let me explain. Since the age of 2 years old I would wake up my Mother in the middle of the night and beg her to hit my legs because that was the only way to relieve the pain that was deep enough in the muscle of my thighs, I also have the same type of pain in my upper arms and in my buttocks muscles. I have lived with this same pain for 37 years. I was diagnosed about 10 or so years ago with fibromyalgia, which I do have have however now I know why no matter what I do nothing will make my pain go away. I have now been diagnosed with Ehlers Danlos Syndrome, type#3. This is the hyper-mobility type; Ehlers Danlos Syndrome is a connective tissue disease that effects the collagen in your body. Collagen is and works with every part in your body, including your blood vessels, organs, muscles tissue, and much more. There is no cure. If you know me at all, you also know I can do anything and everything flexible.....for instance, while standing take my toe and touch it to my nose with no effort at all, I am also double jointed in some places. Along with this diagnosis this answers so many questions for me, like why I constantly have migraines, and why my blood pressure is so low all the time. Also, why I have neurocardiogenic syncope which is my blood pressure dropping, my heart rate dropping and me passing out. This also answers as to why my hands and feet are cold almost all of the time, the list continues with wide spread pain, and seizures when I was younger. To go along with the Ehlers Danlos, I have SVT(super ventricular tachycardia), and atrial fibrillation. At this time I have been referred to a geneticist, and I am awaiting my appointment, after filling out 19 pages of paper work.....this will be at Baylor in Houston. This diagnosis for my family and I means an answer to prayer that we have been looking for, for more than 37 years! All the sickness, and clumsiness and pain all has an answer. About 1 in 5,000, so it’s apparently still considered rare. Thank you all for the prayers in advance😘😘 Example of my toes in the pictures :)

A NEW BEGINNING

Last week was a very interesting and very busy week for our family. Several major changes were made in our family. Most of them were due to certain circumstances and we made these decisions for the best of our family. Last week both of our children were enrolled full time as students in Bullard ISD. Abby was in 7th grade, and Carter in 5th. Friday, October 6th, I withdrew both children. They will both be doing public school online. This is what is best for our family at this time. I had to quit working my 8-5 M-F job, and am now at home with them 100% of the time. Last week Chris' father, my Father-in-law went in to have a double bypass, and they ended up doing a triple bypass, via open heart surgery. He is still in the hospital recovering. My step Grandmother fell as my Father-in-law was going into surgery, and she broke her pelvis. She is now in a rehab facility recovering. Our family needs lots of prayers during this time. I will say that the transformation from traditional public school to online so far has been a smooth one. Within less than a week, I already had them enrolled. They both have a computer being shipped to them, along with supplies and such. I am not angry at the Bullard School District, however I will say that the students there did not make my children's lives very joyful. School was hard when I was in school, in fact this is why I graduated a year early, and got out. I personally disliked school very much. I also elected to do all of my college online, this way I did not have to be bothered by students, staff or faculty. We are very fortunate that we have our family, and Church family at this time. But most of all Jesus! Without HIM, we would have crumbled during this time. Please no questions as far as what else is going on. Everyone that needs to know, knows. We appreciate prayers, And God knows what is needed. Thank you in advance.

LITTLE MISTER & PEARLS AND CURLS

I just finished working with two really cute kits by Leaving a Legacy Designs: LITTLE MISTER, AND PEARLS AND CURLS:

Here are the layouts that I made:

So, this post is not going to be one of my typical posts....I am going to just be blunt, because I need somewhere to let out my feelings and vent. Right now I am sad, and upset, and there is nothing to really fix the situation, and I need to let it out. I have fibromyalgia, and mine is so bad/severe that my neuro and rhemo docs think I have probably had it since I was about 3. When I was little, at night my legs would hurt so bad, I would cry and cry, I could not sleep....I would beg my mother to hit my legs in the top of the thigh muscle as hard as she could just so the pain would ease for a minute. Since then my legs have only gotten worse, and now it is throughout my body. I also have several other conditions such as neurological-cardiac syncope, paroxysmal atrial fibrillation, and Paroxysmal supraventricular tachycardia. With these three heart conditions and my fibro, that in turn makes me very EXHAUSTED. I am only 35, however each morning is a SEVERE struggle just to get out of bed. I was working for a while, but I literally could not do my job any longer. I started having other medical issues due to too much stress. Now, my energy level is just so low. This morning for example, I got up got ready for church, drove to church, and came home, and I am exhausted. I have a HUGE pile of laundry that needs to be done, a kitchen that needs cleaning, and that is not even mentioning all of the the really deep cleaning that needs to be done. I just can't do it. Taking the kids to school in the morning and picking them up in the afternoon, is a chore. No one seems to understand that, or at least that is how it feels. I could be wrong. And now to my point. Our family use to be very involved at our church, we love our church family, they are truly our family. However, recently it has gotten so big that the only way to get involved is small groups and other ways during the week. Im doing good right now just to take the kids to school and back. And when summer gets here, I will be doing good, to not go insane with them being home 24/7. I am introvert/extrovert, which means I am an introvert until I want to be an extrovert, until I feel secure and happy. Which is with the ones I love and I feel safe. So, right now I feel alone all alone. I have God, and without Him I would truly have NOTHING!!! But, those of you know how it feels to be close to your God Family, and then not, and right now I am just sad. So, for now this is me missing all of you............

This layout was made using Sad times by Blue Heart Scraps, and template by Blue Heart Scraps too!

SUPER SATURDAY AT SNP!!!

EVERYDAY HEROS

Brothers and Sisters are like superheroes. Now you can scrap those superheroes with Leaving a Legacy Designs newest collection: Everyday Hero. The kit is full of fun superhero elements, half tone and distressed papers as well as an upper case alpha with numbers/symbols in 8 colors. Collection is available at Gingerscraps AND Scraps N Pieces and is 40% off the first week. at Gingerscraps at SNP The Creative Team did an amazing job... Layout by Dawn Layout by Dawn Layout by LLD Layout by LLD Layout by Jennifer Layout by Yabby Layout by Tina A Layout by Tina A Layout by Tina C Layout by Tina C Layout by Teresa Layout by Teresa Layout by Trinity Layout by Trinity Layout by Tammy Layout by Tammy Layout by Kim G Layout by Kim G Have a great Friday! It is spring break in Texas and we are off to the zoo and maybe some putt putt! YAY!

SNAPPY AND HUNGRY HIPPO!

I was just able to work with two really fun kits! Snappy and Hungry Hippo, both from Leaving a Legacy designs:

Here are the layouts that I made: