New Diagnosis

So, if you know me very well at all, then you know most of my life I have suffered in pain. If not, let me explain. Since the age of 2 years old I would wake up my Mother in the middle of the night and beg her to hit my legs because that was the only way to relieve the pain that was deep enough in the muscle of my thighs, I also have the same type of pain in my upper arms and in my buttocks muscles. I have lived with this same pain for 37 years. I was diagnosed about 10 or so years ago with fibromyalgia, which I do have have however now I know why no matter what I do nothing will make my pain go away. I have now been diagnosed with Ehlers Danlos Syndrome, type#3. This is the hyper-mobility type; Ehlers Danlos Syndrome is a connective tissue disease that effects the collagen in your body. Collagen is and works with every part in your body, including your blood vessels, organs, muscles tissue, and much more. There is no cure. If you know me at all, you also know I can do anything and everything flexible.....for instance, while standing take my toe and touch it to my nose with no effort at all, I am also double jointed in some places. Along with this diagnosis this answers so many questions for me, like why I constantly have migraines, and why my blood pressure is so low all the time. Also, why I have neurocardiogenic syncope which is my blood pressure dropping, my heart rate dropping and me passing out. This also answers as to why my hands and feet are cold almost all of the time, the list continues with wide spread pain, and seizures when I was younger. To go along with the Ehlers Danlos, I have SVT(super ventricular tachycardia), and atrial fibrillation. At this time I have been referred to a geneticist, and I am awaiting my appointment, after filling out 19 pages of paper work.....this will be at Baylor in Houston. This diagnosis for my family and I means an answer to prayer that we have been looking for, for more than 37 years! All the sickness, and clumsiness and pain all has an answer. About 1 in 5,000, so it’s apparently still considered rare. Thank you all for the prayers in advance😘😘 Example of my toes in the pictures :)